Positivity rules!!

The man from delmonte ...... he said YES!!! Hooooooraaay!!!

Little happy dance :)

Got the news yesterday - should start week after next. I am unquietly confident that this is going to put me in complete remission.......and then I am going to build an anti cancer wall and not let the bugga back in...it's been emotional cancer but we are over! Something along those lines :) I simply refuse to get side effects, particularly the one where you go mad and die - that is definitely unacceptable! I am going to breeze through it with grace and style and possibly some glamour, I will be chanting my heart out and being generally amazing. In fact people will look at me and suspect I have made the whole thing up for attention! Which I havent by the way, or have I?? Oh blimey thats way too deep, right enough psycho babble!

Celebrated by going out for dinner and fizzy  with hubby and bros, then back at home spent half the night dancing and singing along with Jesus Christ Superstar - me and my brother played all members of the cast and were filmed by his girlfriend- we were epic! If I hadn't failed that dam bugsy malone audition when I was 13 how different my life would have been, I was surely born for musical theatre! My skills went unappreciated by  an anonymous neighbour though....still a mystery....I have delivered flowers and apologies to two sets of bemused neighbours who heard nothing.......anyhoooo, consequently have cancelled the invite for eleven people to come for dinner tonight, sorry, maybe another time! We are going out to see friends quite a long way away so I definitely annoy my neighbours :)

Well, let the good times roll!

Loads of love and shiney ness and lovely things

Sim xxxxxxxxxxxxxx

PS the man from Delmonte for those not from the UK or of a certain age was an advert from the eighties where if I remember correctly a whole village of possibly spanish people were awaiting the decision on whether or not the oranges from said village were to be used to make Delmonte orange juice. It was quite intense, they were all waiting and then someone ran out and said "the man from Delmonte .............he said YES!!" and the village cheered......it might of even be "He say yes!!" might need to you tube it right now......oh god could I have got that madness virus without even having the drug yet? No its all good, am just happy and mildly hysterical.........byeeeeeeeeeee :)

Bizarre, but in a good way...

Good News! Had a phone call from the hospital today - my application for Brentuximab will be heard next Monday and the Doc has discovered that it is not as expensive as he first thought (my dear hubby did ask him twice to recheck the figures, and I was all like - er yeah I am sure he has.........) AND that it has been approved for another patient in the area..........so the application is looking "more promising" than when he saw me last week.

This is so bizarre, what a rollercoaster ride! I'm not having treatment... I am having treatment.....no I can't have treatment.........or can I?? I have to admit that although I totally accept if it is no, the thought of it as a possibility is now very exciting!!

So, clearly need to try and not think about this too much as that will for one thing make the next week drag horribly and secondly I don't want to get my hopes up. Need to bring it back to the now- that's all any of us have really got.

Did more Zumba last night, went by myself (cheers 'mates') is so ace, I am about to book myself in for double classes in the morning- oh yes! Hey ho, well I am off out on my bike with Tilly Picalilly- we shall zoom up the seafront in the dark, go us!

I nicked this quote off my niece's wall:

"Don't listen to anyone who tells you that you can't do this or that. That's nonsense. Make up your mind that you'll never use crutches or a stick, then have a go at everything. Go anywhere you want to. But never, never let them persuade you that things are too difficult or impossible"

Douglas Bader

I like that, it definitately speaks to me :)

Peace, love and rainbows xxxxxxxxxxxxxxxxxxxxxxxx

Embrace it!

Happy New Year!!! We have had a great festive season, loads of fun and good memories:) I was spoilt rotten at Christmas, nice. New Year's Eve was a blast! My brother threw the bestest party with a short break in the middle for fireworks on the beach and seeing in the new year with all the Exmouth revellers. Everyone embraced musical statues- made me proud!

On the 5th of January I merrily rocked up to my Consultant appointment in order to, as per discussed in November, sign consent for the Brentuximab treatment and set a date.......or not! The treatment was free initially (is only just licenced) but is now quarter of a million pounds! Making it the most expensive treatment he has ever come across, it will go to a board for a decision but they usually make decisions about ten, twenty thousand and he has made it clear that this treatment is unlikely to be approved I mean it's not even a cure so.....there it is.

So I have to adjust the trajectory for this year......It's kind of fine, I mean the  Brentuximab was meant to prolong my life for perhaps ten months but wasn't a cure. And at the end of the day, I decided against it last year which was the right thing at that time. I was supposed to be pushing up the daisies by now and look at me - alive and kicking!!! I have had 6 months of living life to the full, not being a patient and having the time to get my head around my situation. Ha! Also I have managed to increase my life expectancy somehow......Doc said I had less than 50% chance of being alive this time next year....well Hellooooo!! - In July I had 6 months! Apparently my 'disease is behaving unusually' ie slower to grow - great! Maybe I am doing something right (woman cures cancer thru dancing and laughing)  I am also comforted by his reassurance that I am not going to suddenly drop dead (phew) and that there will be a gradual decline in my health over a few months - which so far there is no decline- yessssssss!!

So, as advertised on facebook - actual massive party on 7th April- 2nd wedding plus my pseudo 40th birthday party! It's totally going to rock!!!

OMG!!! Zumba!!! so brilliant!! Also have been doing street dance classes, loads of badminton and riding my bike with Tilly, yes that's right she is competent at running along beside me, it's awesome! In a couple of weeks a few of us are starting salsa classes, life is fun! Say yes!! Who actually cares if you look like a twat?! Embrace it!!

Love and Hugs 2012 styleeeee
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