I am now the proud owner of a PICC line which is actually a godsend just doesn’t look very sexy! Once that was in and healed I started chemo 9th May Mon to Friday, including a continuous bag to wear at home(def not sexy but found a cute little bag to wear over my shoulder as they had made a hideous thing out of tubi grip) different chemo regime to last time this is prelude to stem cell transplant. Going in and out everyday was a chore but it wasn’t toooooo bad. Being in there for hours is kind of like a really boring flight to nowhere when you get all agitated and over it and cant sleep or do anything and feel a bit rubbish on top of that! They scared the pants off me b4 treatment not with my prognosis (fair to middling basically) but by telling me I may put on 7kgs in a week, 7kgs OMG! I had to be weighed everyday and I made the nurse hold my home chemo bag in case it added more grams, anyway thankfully I pulled through and only put on 2kg which is now wee’d out, thank god. At least with my sexy picc line theres no more cannulation for me – hurrah!!
Had the last weekend of my 5 month yoga course at the end of that chemo week I was all ready to embrace it but bailed and got picked up a few hours later! Basically, couldnt hold a conversation, couldnt eat, couldnt listen to theory, couldnt actually do any yoga so realized was probably better off at home! Still it was good to see all my fellow yoga peeps, it has been really good and seriously once I have kicked cancer’s butt again I am sooo going to an ashram in India for a bit, its on!
Ha check this out, I asked my consultant for a physio referral as I had seen leaflets around for benefits of exercise and STC, ha they nearly bit my hand off! Apparently I am the first person to enquire about it and they are really excited to work with me when I am an inpatient. I will have a static bike, weights and a wii fit in my isolation room, how cool is that ?? I am all in for the free personal training! Shallow? Moi? As if…
So after that weekend of feeling like actual death I woke up last Monday with ZINGGGGG!!! I felt brilliant all week, realized that I hadn’t been malingering over the last week at all! Also realized how ill and tired I was pre treatment in the light of now feeling back to normal!! So when I went for bloods and check up that week I was massively grumpy to find out my white cells were in my boots and was advised not to socialize or even go to the shops in case I catch something and basically die! My consultant seems to think I am in denial as I told him I was clearly cured and probably don’t need any more treatment, to which he replied here’s some prophylactic anti bugs and come in Monday for a magnesium infusion, how rude!
So Monday I had the infusion, more bloods which showed nearly no white cells, excellent! Now I have to stab me self in the belly every day with stuff to stimulate white cell growth in bone marrow, good times!! Lucky I am bloody hard as nails really!
Second lot ESHAP started June 6th, same again except I was mentally prepared, taking longer this time to feel back to 'normal'. Hair falling out so have had it chopped (ended up having a lovely sunday being totally pampered...it started as a haircut and I came out manicured, pedicured, fed and feeling very special). I have also had a fab trip to London where I laughed more than in ages and met some very wonderful people.
So apart from the inevitable ups and downs, things are good, I have been looked after well by family and friends. I am in danger of overusing ‘but I’ve got cancer’ to get anything from tea and chocolate to gifts and holidays…… and to get out of housework, shopping etc Oh well maybe if I go quiet for a bit I can pull it out later for something I really want!?? I know am such a bitch!
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