Saw my Consultant last Thursday who gave me the low down on my options, knew things were bad when he took us into the 'quiet room' and brought the specialist nurse with him.......we spent about an hour with him and I asked him to please put it all in writing as was pretty overwhelming amount of info to take on. Today I got the letter........
"hodgkins has enlarged with significant enlargement of the mediastinal mass.................explained to her that her prognosis is now poor and the chance of a cure is small"
The letter then outlines 5 options:
a) do nothing (?6 months to live)
b) more chemo that has 50% chance of working, if it does work then 20% chance of being alive in 5 years (30% chance dying of chemo)
c) Stem cell transplant - will not cure but will allow d)
d) monoclanal antibody - giving short term response 0f approx 10 months
e) if b,c,d work then could go for bone marrow transplant
I have just condensed 3 pages into the above! but basically it's curtains! Am now pretty much decided on option a ...........and then embracing the hippy stuff :)
I would rather die happy, centred and accepting than ill and miserable after tons of yukky treatment it just makes more sense.
Not sure that I have really taken all this in on an emotional level, it's hard to think straight. Lots to consider in the planning of the next few months.
Right now just sending BIG BIG love to everyone I know xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
No comments:
Post a Comment