Jesus Christ Superstar reference there.......anyway......
Right! Yes! Decision made!
Autologous (my own) stem cell transplant - I will be admitted to hospital within the next month, I will have a chemo cocktail called BEAM which is given over 7 days. You start at 7 and count down and on day zero you have the actual transplant. Pretty space age sounding a? The chemo puts the immune system to zero, nada, nuffink. Then the stem cells get put back in and immune system starts to 'grow back' , once blood counts acceptable I can go home - usually around 3 weeks from day zero. Because I am made of magic and have fairies on my side I will obviously be home and fit asap.
In the old days there would have been a prolonged period in proper isolation, now they seem to focus more on sensible universal precautions in and out of hospital, soooo
- No little kids to visit (they are just walking bug towns)
- No flowers, pseudomonas bacteria = baaaaaaad
- No unpeeled fruit / veg / salad
- No uncooked fish / soft cheese / runny yoke eggs
- No ill adults
- No doggy in the bed - :(
- No crowded places / indoor places (salsa, gym, shopping etc)
- No manicures / pedicures
The above will be hard, but I will still be able to walk on the beach, eat bananas, have foot rubs..........(won't want head scratch cos will be bald as a coot!)
I believe in this, I really do think this will cure me- and that is the main thing for me, as I have talked about previously - statistics are not always helpful. By the time I am forty - YES! FORTY! - I will be back in the game :) I am almost looking forward to being sensible and sedate, who knows!?
And, you know, if it doesn't - well, it's been a flippin blast.
My MRI scan was normal- hurrah!!! So I had Brentuximab numero 10 last week. But to make double sure I was all clear had a lumbar puncture on Monday (spinal tap) to test the spinal fluid for the madness virus (PML). Ouch! Poor me! Registrar was sooo awesome though so that was cool - the whole experience re installed all my faith in my ace team.
Having missed a treatment and then late it was 7 weeks between the brentuximab, so it was almost like going back to the beginning a bit and it kicked my arse. But I did manage to do the 10km Jurassic run 2 days after (Horrible!!) so it can't have been that bad :)
Well that's nearly all my news! Apart from- this Friday , 8 of us are going to London to see the Arena production of Jesus Christ Superstar! It's going to be epic!!! It's my fave musical EVER and the fantastic Tim Minchin is Judas!! Thanku universe!!!! Oh and obviously thanks mum for credit carding it months ago when we didn't even know if I would still be here to bug you all!! haha!
Massive love
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