3 cycles brentuximab down......how many to go? who knows..maximum 16...
Side effects remain minimal, I am properly knackered I have to admit, but I am prone to burning the candle at both ends so, possibly don't help myself as much as I could! Memo to me- go to bed earlier!!
Had CT scan results today, 3 lots of brentuximab and I have stable disease......this equals just 90 minutes of the actual drug and it has halted the lymphoma! happy days! I feel really well and I know people aren't lying when they say I look well too! Ha ha FYI, saying you look 'really well' blatantly means , you look fat! Someone said to me the other day I looked 'healthy' which for some reason didn't sound as fat as 'well' does, so that was cool! Of course I would have preferred the scan to say I was all clear but, well I am grateful for feeling so good. It was unfortunate that the Dr delivering my news had way less expertise on my disease than we have....very frustrating, but my main man will be back next week so can have a proper chat.
Yesterday was my birthday, we had a big family dinner and then back to ours for remote control sumo battles and bingo!! Get in!! was tons of fun! Thanks so much for my ACE presents :) good call on all the board games! My son appears to have hidden skills as a bingo hall caller...cool. my little brother gave me a box of 32 malteser bunnies OMFG!!
My lovely mate from NZ has been here nearly a week and quite frankly I don't know how I will deal with her not being here, she is so much part of the furniture,,,,in a good way!
Wedding and party on Saturday- will post photos..
Gotta go bed!
xxx
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