Spring has sprung- hurrah!! Lovely day in the sun, picnic with friends and family .....lush! I am very tired but needed to share an update as has been a while:)
Firstly - am fully alive and kicking, good start a??
So - Brentuximab number 3 occured 3 days ago...and, well it continues to be pretty much a wonder drug for me! I cannot believe how blessed I am to have been able to have access to this drug just when I really needed it.
In summary: my symptoms - FYI, all over itching necessitating daily anti histamines plus frequent night sweats and of course increasing swelling to my right chest - ALL GONE!!! (within first cycle)
Side effect wise this is a total walk in the park compared to the other chemos I have had...yes I am tired, but as I only have fun stuff on my schedule that is not a problem! I can sleep in or nap when I need. The pain was only cycle 1, as was nausea. My hair is fully intact and it will stay like that!!! I have had a slight reduction in appetite (flippin A!!) but nothing dramatic....
All in all, I bloody love you brentuximab!!
Sooooo - scan next week will reveal what the score is inside, I am sure there has been a significant reduction. The treatment will continue to a maximum of 16 cycles, it will stop if the lymphoma should grow (not going to happen) or i get some proper dodgey side effects.
In other news I went to the Ashram for a few days this week for a bit of quiet time...it did the trick I think...came back all floaty and calm :) It really is such an inspirational place - I hope to get there every month. I spent a long time preparing the earth and planting strawberries so I am keen to get back to taste those at least! Really wanted to see a hare but didnt,,,did see a badger on my up there who ran in front of me for yonks. But i really need to see a hare they are like properly magic or some shit! And hey, we all need magic in our lives!
Big party coming up soon, wedding and birthday extravaganza!! Won't say too much apart from it's going to be ACE!!! and we can't wait!
Will write more when I have more energy :)
Peace out all you beautiful people! Enjoy the sunshine, enjoy your friends, family, surroundings, self.....just enjoy life!! I am not being cheesey! Do it!
xxxxxxxxxxxx
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