It's 11 days since I had the first brentuximab treatment and oh my actual god it is sooooo totally working!! The swelling in my chest has reduced at least 70-80% I have literally felt it melt away on a daily basis! A - mazing! I am spun out because 2 solid weeks of ESHAP did zero, zilch, nada! and one half hour big B and whoah there!! complete remission here I come! So, as I said before it has hurt as it's melting away but Helloooo! worth it obviously. I have felt pretty whacked as well but i can still drag my self out of bed for my various activities....Yes that's right I am too ill to go to school but not to ill to go out and play!!!! alright!!?
It's a wierd feeling because despite this mutant swelling I had and in hindsight general oedema chest upwards I did not 'feel' like I was at all affected by the Lymphoma and now to witness such a dramatic effect so rapidly has given me quite a lot of food for thought....most importantly the strong possibility I could be around quite a bit longer than I thought...what am I going to do? (No I don't mean the W word- I mean life experiences and that!!) I can actually look at the year on my calender and start marking things in more than a few months ahead! wow! I do also have to consider bone marrow transplant, but that's a whole other story....This is possibly a second chance, fantastic! I feel like I should 'do' something that makes a difference..........suggestions on a postcard please! It can't all be puppies and rainbows can it?? Or can it...........
On the down side a friend I have been in contact with online who was also waiting for a decision on the brentuximab has been turned down, how bad is that! I am so peed off for her. I can't believe that things so important really can come down to a postcode lottery. I think she is going to try and kick up a stink, so lots of positivity her way :)
I had some acupuncture yesterday as general support for the treatment and side effects and immune system boost, am going tomorrow too. I also have some herbs to brew and drink twice a day - all good stuff :) Oh and had salsa therapy last night! (omg actually danced with Jeff Goldblum!! well a brummie non film star version anyway) was so awesome I love it, it's so much fun! Now I have to add 'dance in columbia' to my bucket list, haha! Undecided on the shoe colour tho..
Well, am supposed to run today so I have painted my nails, done a face mask, played with the dog, tidied up, been on facebook, writing my blog, listened to some salsa music............er what's missing? oh yeah my run, my 'oh yeah I'm in training for the GWR' run....ooops!
Peace out
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