TMI??

Check it out!!!! My neutrophils have ROCKETED in 24 hours from 0.1 to 0.3! I rock! They need to be 0.5 before I can come out of isolation and thennn go home! They won’t go down again now but they may plateau a bit before a steady climb upwards.

I feel pretty normal, I spent the whole day out of bed- still ON the bed mostly but not IN the bed so…progress! I have been eating again for a couple of days due to swallowing being back to normal, my mouth not being sore and the general gripey gut horror is over. Too Much Info ALERT - I pretty much didn’t eat for a week and had diahorrea about a million times a day for 10 days (I actually blocked the toilet, oh the indignity, it took 4 separate people to sort it…..think it might be something to do with the luxury andrex bog roll I had bought in which is basically like wiping your botty with a duvet) . So after all this drama I must be all thin and that yeah? No, I lost about 3 pounds! 3 stinking (literally) pounds! Outrage! I am joking, sort of. Sensibly it’s good that I maintained weight and also had enough fat and nutritional stores to see me through. 

It’s been a rollercoaster and I have literally just had to strap in, try not to worry and just wait for it to be over. I do feel like I have been in a weird suspended animation and can't really separate all the days.

So, I will be home within the week. After that I will come in a couple of days a week for blood tests and check ups. I will still be neutropenic , so still at risk of infection when I get home. I have to wait for the neutrophils to come up to normal, 1.5 plus before I can resume normal activities and eat sushi again J

I will have a PET scan a monthish after discharge which will hopefully show no cancer and after that well I just have to stay bloody well!! Go back to work or something daft.

Re my ‘recovery sofa of joy and love’ fund; WOW! I cannot believe the generosity! What massive kindness, truly amazing. My little brother has been amazing as a fund raiser, and I am sending him and hubby out tomorrow to see what the options are! Thank you a million times all you lovely people! And it’s not late, if you want to be a part of the ‘recovery sofa of joy and love’ fund just follow the instructions for paypal on the previous post J

So that is me – day 12 post stem cell transplant, doing just fine. My head is bald and shiney, but hey, I am alive! ooooh and did I mention I am getting a new sofa…..

Lots of Love , sorry for the overshare

Sim xxxx