Good News! Had a phone call from the hospital today - my application for Brentuximab will be heard next Monday and the Doc has discovered that it is not as expensive as he first thought (my dear hubby did ask him twice to recheck the figures, and I was all like - er yeah I am sure he has.........) AND that it has been approved for another patient in the area..........so the application is looking "more promising" than when he saw me last week.
This is so bizarre, what a rollercoaster ride! I'm not having treatment... I am having treatment.....no I can't have treatment.........or can I?? I have to admit that although I totally accept if it is no, the thought of it as a possibility is now very exciting!!
So, clearly need to try and not think about this too much as that will for one thing make the next week drag horribly and secondly I don't want to get my hopes up. Need to bring it back to the now- that's all any of us have really got.
Did more Zumba last night, went by myself (cheers 'mates') is so ace, I am about to book myself in for double classes in the morning- oh yes! Hey ho, well I am off out on my bike with Tilly Picalilly- we shall zoom up the seafront in the dark, go us!
I nicked this quote off my niece's wall:
"Don't listen to anyone who tells you that you can't do this or that. That's nonsense. Make up your mind that you'll never use crutches or a stick, then have a go at everything. Go anywhere you want to. But never, never let them persuade you that things are too difficult or impossible"
Douglas Bader
I like that, it definitately speaks to me :)
Peace, love and rainbows xxxxxxxxxxxxxxxxxxxxxxxx
Go Sim, sounding incredibly positive, i'm fulla admiration for you, lotsalove x Paul
ReplyDeleteim everything crossed that you get your treatment im sure you will. salx
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